Coalition Members


American Academy of Cerebral Palsy & Developmental Medicine

The American Academy for Cerebral Palsy and Developmental Medicine is a multidisciplinary scientific society devoted to the study of cerebral palsy and other childhood onset disabilities, to promoting professional education for the treatment and management of these conditions, and to improving the quality of life for people with these disabilities.

  • www.aacpdm.org

American Academy of Neurology

The American Academy of Neurology (AAN), established in 1948, is an international professional association of more than 18,000 neurologists and neuroscience professionals dedicated to providing the best possible care for patients with neurological disorders.

  • www.aan.com

American Academy of Physical Medicine and Rehabilitation

As the premier medical society for the specialty of physical medicine and rehabilitation, AAPM&R; is the only organization exclusively serving the needs of practicing PM&R physicians. With more than 7,000 members, the Academy represents more than 87 percent of U.S. physiatrists and international colleagues from 37 countries.

  • www.aapmr.org

American Association of Neurological Surgeons

The American Association of Neurological Surgeons is dedicated to advancing the specialty of neurological surgery and serving as the spokesorganization for all practitioners of the specialty of neurosurgery, in order to provide the highest quality of care to our patients.

  • www.aans.org

American Association of Neuroscience Nurses

The American Association of Neuroscience Nurses (AANN) is committed to the advancement of neuroscience nursing as a specialty through the development and support of nurses to promote excellence in patient care.

  • www.aann.org

American Geriatrics Society

The American Geriatrics Society is a nationwide, not-for-profit association of geriatrics health care professionals dedicated to improving the health, independence, and quality of life of all older people.

  • www.americangeriatrics.org

American Occupational Therapy Association, Inc.

The American Occupational Therapy Association (AOTA) is the national professional association representing the interests of more than 100,000 occupational therapists, occupational therapy assistants and students of occupational therapy.

  • www.aota.org

American Parkinson’s Disease Association

The American Parkinson Disease Association, Inc. was founded in 1961 to “ease the burden and find a cure” for Parkinson’s disease. The organization focuses its energies on research, patient support, education and raising public awareness of the disease.

  • www.apdaparkinson.org

American Physical Therapy Association

The American Physical Therapy Association (APTA) is a national professional organization representing more than 66,000 members. Its goal is to foster advancements in physical therapy practice, research, and education.

  • www.apta.org

American Society of Consultant Pharmacists

The American Society of Consultant Pharmacists (ASCP) Foundation exists to improve the health and well-being of older persons through appropriate, effective, and safe medication use.

  • www.ascpfoundation.org

American Stroke Association

The American Stroke Association is the division of the American Heart Association thatÝfocuses on reducing disability and death from stroke through research, education, fund raising and advocacy.

  • www.strokeassociation.org

Bachmann-Strauss Dystonia and Parkinson Foundation, Inc.

The BSDPF supports patients, family members, researchers, clinicians and volunteers working in partnership to find better medical treatments and a cure for dystonia and Parkinson’s disease.

  • www.dystonia-parkinsons.org

Benign Essential Blepharospasm Research Foundation, Inc.

The BEBRF was granted its charter in 1981 with the purpose “…to undertake, promote, develop and carry on the search for the cause and a cure for benign essential blepharospasm and other related disorders and infirmities of the facial musculature…”

  • www.blepharospasm.org

Care4Dystonia, Inc.

Care4Dystonia, Inc. is a nationwide (U.S.) community-based voluntary health organization dedicated to patient care, awareness, collaboration, and education in the dystonia community.

  • www.care4dystonia.org

Child Neurology Foundation

The Child Neurology Foundation’s mission is to be an advocate for children and adolescents with neurologic and developmental disorders through the advancement of child neurology.

  • www.childneurologyfoundation.org

Child Neurology Society

The Child Neurology Society is a non-profit professional association of pediatric neurologists in the United States, Canada, and worldwide devoted to fostering the discipline of child neurology and promoting the optimal care and welfare of children with neurological and neurodevelopmental disorders.

  • www.childneurologysociety.org

Dystonia Medical Research Foundation

The mission of the Dystonia Medical Research Foundation is to advance research for more treatments and ultimately a cure; to promote awareness and education; and to support the needs and well being of affected individuals and families.

  • www.dystonia-foundation.org

Easter Seals

Easter Seals has been helping individuals with disabilities and special needs, and their families, live better lives for more than 80 years. From child development centers to physical rehabilitation and job training for people with disabilities, Easter Seals offers a variety of services to help people with disabilities address life’s challenges and achieve personal goals.

  • www.easterseals.com

Huntington’s Disease Society of America

The Huntington’s Disease Society of America (HDSA) is a national non-profit voluntary health agency dedicated to finding a cure for Huntington’s Disease (HD).

  • www.hdsa.org

Huntington Study Group

The Huntington Study Group (HSG) is a non-profit group of physicians and other health care providers from medical centers in the U.S., Canada, Europe and Australia, experienced in the care of Huntington patients and dedicated to clinical research of Huntington’s disease.

  • www.huntington-study-group.org

International Dystonia On-Line Support Group

The International Dystonia On-Line Support Group has contacted over 7,000 people with all types of dystonia from all around the world.

  • www.dystonia-support.org

International Essential Tremor Foundation

The International Essential Tremor Foundation (IETF) was created to provide information, services and support to individuals and families affected by essential tremor (ET). The organization encourages and promotes research in an effort to determine the causes, treatment and ultimately the cure for ET.

  • www.essentialtremor.org

International Rett Syndrome Association

The IRSA aims to support and stimulate biomedical research that will determine the cause and find treatments and cures for Rett syndrome, to increase public awareness of Rett syndrome, and to provide informational and emotional support to families of children with Rett syndrome.

  • www.rettsyndrome.org

Movement Disorder Society

The Movement Disorder Society (MDS) is an international professional society of clinicians, scientists, and other healthcare professionals, who are interested in Parkinson’s disease, related neurodegenerative and neurodevelopmental disorders, hyperkinetic Movement Disorders, and abnormalities in muscle tone and motor control.

  • www.movementdisorders.org

Musicians with Dystonia

The Dystonia Medical Research Foundation (DMRF) sponsors “Musicians with Dystonia” to encourage musicians with dystonia – particularly those who do not have access to a “in person” support group – to share their experiences and frustrations.

  • www.dystonia-bb.org/forums/mwd/

National Alliance for Caregiving

The National Alliance for Caregiving is a non-profit coalition of more than 40 national organizations. The Alliance improves the quality of life of family caregivers and their care recipients through public awareness, research, advocacy, coalition building, policy analysis, education, and international alliances.

  • www.caregiving.org

National Ataxia Foundation

The National Ataxia Foundation is a nonprofit, membership-supported organization established in 1957 to help ataxia families. The Foundation is dedicated to improving the lives of persons affected by ataxia through support, education, and research.

  • www.ataxia.org

National Family Caregivers Association

The National Family Caregivers Association empowers family caregivers to act on behalf of themselves and their loved ones, and to remove barriers to health and well being. The web site offers education, resources, support and an opportunity to connect and share experiences. Membership is free to family caregivers.

  • www.thefamilycaregiver.org

National Multiple Sclerosis Society

Founded in 1946, the National Multiple Sclerosis Society supports MS research, offers services for people with MS, provides professional education programs, and furthers MS advocacy efforts.

  • www.nmss.org

National Organization for Rare Disorders, Inc.

NORD is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

  • www.rarediseases.org

National Parkinson Foundation, Inc.

The National Parkinson Foundation is the largest organization serving persons affected by Parkinson disease throughout the world. The Foundation supports research for a cure and programs dedicated to improving care and quality of life.

  • www.parkinson.org

The Life in Motion campaign is funded by an unrestricted educational grant from Allergan, Inc.
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